All posts byArthritis Foundation

meg maley arthritis foundation advocacy

Meg Maley Joins the Arthritis Foundation to #AdvocateforArthritis

At this year’s 2019 Advocacy Summit, the Arthritis Foundation was excited to welcomeMeg Maley, CBS’ “Big Brother” Season 17 houseguest, as a first-time Advocate.

Meg was diagnosed withpsoriatic arthritis (PsA)when she was just 12 years old. After her time on “Big Brother” came to a close, Meg decided to use her newly-found platform as an opportunity to share her story of living with PsA and uveitis. Since then, she has emceed theWalk to Cure Arthritis在纽约举办了许多筹款活动,为关节炎基金会筹款。

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pharmacist gag clauses legislation

Congress Said Yes! to Transparency at the Pharmacy Counter

In a strong show of bipartisanship, the U.S. House of Representatives and U.S. Senate overwhelmingly passed two pieces of legislation at the end of September that would make it easier for pharmacists to tell patients about their payment options at the pharmacy counter.

Beginning last spring, the Arthritis Foundation led the charge by building support in Congress and among other patient and provider organizations about the importance of this legislation. The bills moved quickly through the legislative process thanks to the strength ofArthritis Foundation AdvocatesandAmbassadors, who called on their members of Congress to vote in favor of the legislation by sharing their stories.

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100 advocacy state victories

100 State Advocacy Victories….and Counting!

The Arthritis Foundation reached a milestone in September, securing our 100thstate legislative victory since 2014! Congratulations Advocates!! All of these victories were made possible due to all of you!

Our victories occurred in 47 states plus Washington, DC, impacting more than 50 million people with doctor-diagnosed arthritis, and have focused on manypatient access to care issueslike:

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open enrollment take care

TAKE CARE: Advocacy Blog Series – Rock and Enroll With Us This Open Enrollment Season

It’s that time of year again! Leaves are changing, seasons are shifting and it’s officially time to kick off all thingsopen enrollment.Learn the ins and outs of open enrollment so you have the tools to find the plan that works best for you.

Start here with our 10 Tips for Managing Your Care Costs video – it’s quick and easy, and in less than five minutes you’ll be 10 tips closer to mastering your health coverage.

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association health plans

TAKE CARE: Advocacy Blog Series – Association Health Plans

We are continuing our advocacy blog series meant to help youtake carewhen it comes to important arthritis health care and coverage issues. If you’re just now tuning into this series, check out our previous advocacy blog postshere.In August, we kicked off a focus on health insurance benefits as we approachopen enrollment今年秋天。本周,我们来仔细看看协会的健康计划。

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stephanie kwiecien

Ambassador Spotlight – Stephanie Kwiecien

Advocating for the arthritis community27岁的斯蒂芬妮·奎埃辛(Stephanie Kwiecien)说,她已经恢复了被欺凌关闭的声音。

“Advocacy is really important to me because it gave me back the voice I thought I’d lost,” says Kwiecien, who was diagnosed with juvenile rheumatoid arthritis (now known asjuvenile idiopathic arthritis) when she was 18 months old. During her elementary and middle school years, Kwiecien’s peers were unfazed by her condition and her teachers were understanding. But high school was different.

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minnesota step therapy advocacy

MN Governor Dayton Signs Legislation for Step Therapy Guardrails

On May 19, Minnesota Gov. Mark Dayton signed HB 3196 into law! Step therapy legislation gives physicians a clear path toward getting their patients the medications they need.

Having access to affordable, effective and specialized medication is critical for the 54 million Americans living with doctor-diagnosed arthritis nationwide, including over 900,000 in Minnesota. The Arthritis Foundation thanks the bill’s sponsors and Gov. Dayton for helping provide these patient protections to Minnesotans.

Step Therapyis a practice used by insurers that requires people with arthritis to try lower-cost medications before allowing more expensive treatments, despite a physician’s recommendation.

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short term health plans

TAKE CARE: Advocacy Blog Series

Short-Term Health Plans

We are continuing our advocacy blog series meant to help youtake carewhen it comes to important arthritis health care and coverage issues. If you’re now just tuning into this series, check out previous advocacy blog postshere.Our lasttake careblog kicked off a focus on health insurance benefits andopen enrollment.今天我们将探讨短期健康计划,这是一种已经上市一段时间的保险,但由于政府采取的新措施而受到关注。继续往下读,了解这些计划,以及为什么它们对关节炎患者来说是不令人满意的选择。

What are short-term health plans?

Short-term health plans are not new. As the name suggests, these plans are meant to fill in temporary gaps in health coverage. For example, if an individual is in between jobs or needs coverage outside of the traditional open enrollment period, short-term plans are available to purchase for up to three months from insurers and brokers.

Why are short-term plans in the news?

Earlier this month, the federal Departments of Labor, Treasury, and Health and Human Services finalized a regulation that loosens and expands the availability of short-term plans. Despiteover 98 percentof health care stakeholders strongly opposing this action, the administration decided to move forward with its proposal.

What is changing with short-term health plans?

Beginning in October, the new regulation permits short-term plans to be sold for 12 months and renewed by an individual for up to 3 years. This is a change from current rules, which do not allow short-term plans to be a substitute for comprehensive coverage. Today, they are limited to a duration of 3 months and are not renewable health policies.

Are short-term health plans different than individual market health plans?

是的,短期医疗计划与医疗保险交易所提供的计划是分开的,因为它们不需要遵守《平价医疗法案》(Affordable Care Act)制定的对患者的重要保护措施。You will not find these plans onhealthcare.gov, for example. Since short-term plans are not considered comprehensive coverage, the new regulation means insurers and brokers can more widely sell short-term plans that:

  • Deny enrollment based on age, gender, health status, or other factors that might suggest an individual’s future use of health care services
  • Exclude coverage for pre-existing conditions
  • Exclude any or all of the essential health benefits like prescription drug coverage, emergency care, or other provider services
  • Apply annual or lifetime dollar limits on coverage
  • Increase patient out-of-pocket maximums above limits imposed by current law
  • Impose more stringent network adequacy requirements

如果关节炎患者参加短期健康计划,他们会面临什么样的问题?

Short-term plans are not ideal for people with arthritis since they can deny coverage for people with pre-existing conditions. The plans are also medically underwritten, meaning you would be asked to fill out a medical history; in turn, this is used to approve or deny your enrollment. The Affordable Care Act prohibited this behavior for plans offered on the individual market. However, because short-term plans are not considered comprehensive health coverage, they do not need to comply with this rule.

Do short-term policies need to disclose anything specific to consumers?

Yes, they must include clear language stating these plans may not work best for people with pre-existing conditions like arthritis. Be on the lookout for disclosure language that:

  • Urges you to carefully check the policy for exclusions or limitations regarding coverage of pre-existing conditions, or specific health benefits like prescription drugs
  • Warns a loss of short-term plan coverage means you may have to wait until the next open enrollment period before enrolling in health insurance again

For any health plan, it is always good practice to carefully review the terms and conditions to understand the scope of benefits and potential out-of-pocket costs you may incur.

Is there anything else I should be aware of about short-term health plans during open enrollment?

Short-term health plans often misrepresent health coverage and benefits; these plans also have a history of fraud. In addition, you should know that since these health plans are temporary and do not offer comprehensive coverage, premiums are significantly cheaper than insurance found onhealthcare.gov.虽然较低的保费可能听起来很有吸引力,但如果你意外地被诊断出患有关节炎等慢性疾病,你的保险计划可能不会为处方药或急诊室等服务提供保险,以帮助你管理自己的健康——而且不提前披露医疗状况也可能导致保险公司取消保险政策,让你失去任何医疗保险。

What resources are available from the Arthritis Foundation?

In the coming months the Arthritis Foundation will be raising awareness about the open enrollment period, but you can get started with ourYour Coverage, Your Care toolkit.这是一个很好的资源,可以帮助你了解你的保险选择,索赔过程,以及克服障碍的技巧。此外,如果您有任何关于您的医疗保健的问题,我们的工作人员有执业临床社会工作者,可以24小时与您交谈,方便您。你可以拨打关节炎基金会热线1-844-HELP(4357)。

If you’d like to stay informed of federal and state-based health care issues, considersigning up to be an Advocate.Becoming a part of our Advocacy grassroots network is an easy way to get involved and stay informed.

Related Resources:

ambassador spotlight maya miserlain

Junior Ambassador Spotlight – Maya Miserlian

By Maya Miserlian

My name is Maya Miserlian, I’m 15 years old, and I am one of 300,000 children in the US withjuvenile arthritis(JA).

At the age of 11 I was diagnosed with Chronic Recurrent Multifocal Osteomyelitis (CRMO), a rare bone disease that is one of the many diseases included in the definition of arthritis umbrella. My diagnosis came after over a year of being told my aching bones were just ‘growing pains’.CRMO每百万人中就有一人患有这种疾病,这让我在过去感到孤独,因为我不认识其他有这种症状的人。在过去的一年里,我被介绍给了关节炎基金会,它在我的CRMO之旅中发挥了很大的作用。Iadvocate for arthritisas aJunior Ambassadorfor the Foundation, which has allowed me to take control of my disease and advocate for myself and others with JA. I consider myself lucky – because I live near my specialist and was able to get on medication that works, I reached remission only three years after my diagnosis. However, easy access to a specialist is not a reality for most people.

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affordable care act update

TAKE CARE: Advocacy Blog Series

Update on the Affordable Care Act

We are continuing our advocacy blog series meant to help youtake carewhen it comes to important arthritis health care and coverage issues. If you are just now tuning into this series, check out our previous blog posts onaccumulator adjustment programs, pharmacistgag orders, President Trump’s drug pricingblueprint,drug rebates, andpremium increases

本周,我们粉碎了最近对平价医疗法案(ACA)的法律挑战。最近,由于政府决定提交一份简报,一桩法庭案件被置于聚光灯下,该简报的主要论点是,联邦法院应该认为《ACA》对有先前病史的人的保护是违宪的。继续阅读了解更多。

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