Tag Archives: juvenile idiopathic arthritis

This SJIA Family Thrives in a New Setting

幼年特发性关节炎(JIA)是儿童和青少年最常见的关节炎类型。10%到20%的JIA患儿有一种罕见而严重的亚型,称为系统性幼年特发性关节炎(SJIA)。这种罕见疾病的症状包括一种名为巨噬细胞(MAS)的免疫细胞过度激活、持续发热、肝和脾肿大、异常出血、中枢神经系统功能障碍和其他潜在并发症。看看一个家庭的困境。Continue readingThis SJIA Family Thrives in a New Setting

juvenile idiopathic research patient-focused meeting

Powerful Testimony at the 2018 JIA Patient-Focused Drug Development Meeting

Hundreds of patients and their families, FDA staff, industry leaders, and researchers convened in Washington, D.C. to participate in the externally-ledJIA Patient-Focused Drug Development (PFDD)meeting on August 2, 2018. The meeting served as a kickoff event to the 4-day Arthritis Foundation JA Conference East.Juvenile idiopathic arthritis(JIA) is the most common type of juvenile arthritis (JA). In many children, it’s a life-long illness with a high risk ofdisease and treatment-related morbidity. There is no cure, and treatments for children are limited.

This meeting, which is part of our strategy to help find a cure for this serious disease, provided an opportunity for patients, patient advocates, and caretakers to talk about the symptoms and issues that matter most to them. JIA parents and their families shared information about the impact of JIA on daily life, the symptoms that are most challenging, experiences with currently available treatments and the need for new and different treatments.

JIA patients and their families were invited to attend in-person and via a live webcast. They shared their experiences by responding to a live poll and discussion questions. Three patients and nine parent panelists told stories about how JIA impacts their daily lives and discussed the wide range of treatments they have tried.

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Your Disease, Your Voice

Join us at the externally-led JIA Patient-Focused Drug Development meeting

We are hosting, along with our partner, the Childhood Arthritis and Rheumatology Research Alliance (CARRA), theJuvenile Idiopathic Arthritis Patient-Focused Drug Development (PFDD) meeting. This meeting, driven by our patients and caregivers, will provide the U.S. Food and Drug Administration (FDA) and industry personnel with input directly from you on how this disease affects your life, your experiences with current treatments, and the need for newer and better treatments.

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women juvenile arthritis heart disease

Women With Juvenile Arthritis May Be at Higher Risk of Heart Disease

Women who havejuvenile idiopathic arthritis(JIA)——根据加拿大的一项新研究,儿童时期发生的几种关节炎的总称似乎比没有炎症性关节炎的女性患心脏病的风险更高。For years, researchers have examined the link between inflammatory forms of arthritis, such asrheumatoid arthritis(RA) orlupus, and an increasedrisk of heart disease. But no one had studied heart health in adults with JIA (another inflammatory form of arthritis), and little was known about the health effects of lifelong JIA during pregnancy.
Continue readingWomen With Juvenile Arthritis May Be at Higher Risk of Heart Disease