A big part of ourCollaborating With Patients for Better Health科学倡议已经与主要伙伴合作建立了风湿病学习卫生系统(RLHS)。The goal of RLHS is to improve quality of care by enhancing communication between patients and their doctors through electronic dashboards.
These dashboards support meaningful conversations and shared decisions about care and treatment plans. They include patient-reported outcomes (PROs), enabling patients to list questions and concerns in advance of a clinical visit. Patients and doctors can turn on/off different data elements to focus on the most meaningful data.
在这个项目的试点阶段，该小组在三个儿科网站创建并测试了基于纸张的仪表板版本。在下一阶段，将创建电子版本的仪表板，并添加成人网站。詹妮弗正在帮助我们使这个项目成功。
Jennifer is a member of the Dartmouth-Hitchcock Adult Pilot Site Team. She was diagnosed withrheumatoid arthritis (RA)10 years ago. While being treated with methotrexate, she started experiencing flares. Her doctor prescribed a short course of prednisone.
和她的医生一起查看RLHS仪表盘(如下图)，帮助他们都看到了她的RAPID3评分中关节计数的增加。这促使她尝试一种新的药物。看到Jennifer在某个时间点的数据，然后随着时间的推移，帮助她和她的医生看到她的类风湿性关节炎活动如何需要一种不同的治疗方法。
Jennifer says, “In the past, when thinking about a change in therapy, I’ve had some hesitation. It involves weighing how well I’m currently doing against things like possible side effects. What impact will the new medication have? Will I feel better? And equally important, what’s the added cost of a new medication?”
The dashboard helps focus conversations between patients and doctors. Asking patients like Jennifer the “Why” behind the reluctance or hesitation about changing medications invites a conversation about patient preferences and whatever extra help they may need.
“We’re trying to improve patient care by helping patients and doctors prepare for office visits, working together as a team, and improving communication between visits,” explains Arthritis
Foundation Senior Vice President Guy Eakin, PhD. “This is a difficult experiment, and exactly the type of challenge we’re proud to be working with patients and professionals to accomplish. We are thankful for the generosity of our donors for making this project possible.”
The Arthritis Foundation is working with the following partner organizations: Childhood Arthritis and Rheumatology Research Alliance (CARRA); the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN); Understanding Childhood Arthritis Network – Canadian/Dutch Collaboration (UCAN, CAN-DU); and the American College of Rheumatology (ACR). The Dartmouth Institute for Health Policy & Clinical Practice facilitates the group by providing strategic oversight and support for the RLHS.
