OurCollaborating With Patients for Better Healthscience initiative has been gettingmore attention. The National Health Council (NHC) has asked Arthritis Foundation Senior Vice President Guy Eakin, PhD, to speak to members of the Science of Patient Engagement Symposium Planning Committee about the challenges of helping patients learn to communicate with their health care providers and become partners in the decision making process to achieve personalized care management.
Dr. Eakin will speak to the group of medical, scientific and research leaders from a variety of patient advocacy organizations, nonprofit health groups and industry on October 29, 2019, at the Capital Hilton in Washington, DC.
这项科学计划的很大一部分是与主要伙伴合作创建风湿病学习卫生系统(RLHS)。RLHS的目标是通过电子仪表盘加强患者和医生之间的交流来提高护理质量。
“We’re trying to improve patient care by helping patients and doctors prepare for office visits, working together as a team, and improving communication between visits,” explains Dr Eakin. “This is a difficult experiment and exactly the type of challenge we’re proud to be working with patients and professionals to accomplish.”
Dr. Eakin will share the team’s experiences, driven by patient involvement, to create the electronic dashboards, which will support meaningful conversations and shared decisions about care and treatment plans. They include patient-reported outcomes (PROs), enabling patients to list questions and concerns in advance of a clinical visit. Patients and doctors can turn on/off different data elements to focus on the most meaningful data.
The Arthritis Foundation is working with the following partner organizations: the Childhood Arthritis and Rheumatology Research Alliance (CARRA); the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN); Understanding Childhood Arthritis Network – Canadian/Dutch Collaboration (UCAN, CAN-DU); and the American College of Rheumatology (ACR). The Dartmouth Institute for Health Policy & Clinical Practice facilitates the group by providing strategic oversight and support for the RLHS.
“通过电子医疗记录(EMR)进行对话并不是一件小事。这就说明了为什么把主要的注册中心聚集在一起，而不是为这个项目选择一个合作伙伴是如此重要，”埃金博士说。“这正是我们为与患者和专业人士合作来完成的挑战而感到自豪的类型。我们非常感谢捐赠者的慷慨，是他们让这个项目成为可能。”