Tag Archives: JRA

Graci Cans for a Cure

Go, Go, Go Graci! Graci Diggs Named 2015 National Youth Honoree for Jingle Bell Run/Walk

Graci Jingle Bell Run Youth HonoreeDiagnosed with juvenile rheumatoid arthritis (JRA) when she was four years old, Graci has endured multiple lab tests, biopsies, injections and medications. In spite of all that, she has often remained — in her mom’s words — outgoing, funny, athletic and honest. But during a particularly bad flare when she was seven years old, her parents saw a drastic change in their daughter.

“Graci’s knee, ankle and hip flared up, and she found herself struggling to walk and keep up with her classmates,” recalls Anna, Graci’s mother. “This left her in a wheelchair for a period of time. We could see her spirit starting to fade, and we could see her slipping into depression.”

Continue readingGo, Go, Go Graci! Graci Diggs Named 2015 National Youth Honoree for Jingle Bell Run/Walk

Dina Gilmore Champion of Yes Massage Therapist

When Failure Isn’t an Option

Walk to Cure Arthritis Anna LegassieSocial media is great for a lot of things — reconnecting with old friends, finding that next job, catching up on the news and perhaps even wasting a little (a lot of!) time. But when Anna Legassie logged on back in May, she wasn’t doing any of those things. She was just trying to get her medicine.

From Excitement to Disappointment

Anna, now 31 years old, was diagnosed with systemic juvenile rheumatoid arthritis (JRA) when she was 11 years old. She has endured six hip surgeries, multiple hospital stays and a constantly changing cocktail of medications to keep her arthritis at bay. After a particularly difficult spring suffering through the side effects of methotrexate, she and her doctor decided to decided to try Orencia (abatacept), a biologic drug that she would would receive by infusion every four weeks. Anna had tried most of the other biologic drugs on the market. None of them had been a fit for her.

Continue readingWhen Failure Isn’t an Option

Dina Gilmore Champion of Yes Massage Therapist

Lexi : Simply Telling Her Story Leads to an Important Invitation

Lexi Polyarticular Juvenile Rheumatoid Arthritis一些即将升入高中的学生会在大学里寻找社交场所。许多人可能会根据离家近或不近来选择一所大学。其他人只会去他们朋友去的地方。亚蕾克西·纳罗茨基有不同的标准。

“我想去纳什维尔的范德比尔特,如果我能进去的话,”莱克西说。“这是一所较小的学校,我不用走那么远。校园很平坦,很容易进入,这几天我感觉不舒服。而且,这里的天气比新泽西这里的好。”

Lexi has been making choices like this since she was a toddler. Lexi clearly remembers when she was diagnosed with polyarticular juvenile rheumatoid arthritis, even though she was just three years old.

“I remember the exact night it all started,” Lexi says. “I had just gotten home from dance class, and I was wearing my tights. All of the sudden, I couldn’t move. “

In the weeks that followed, Lexi spent many days in the hospital and visited multiple specialists. High fevers and swollen joints stumped doctors, even at some of the country’s most renowned medical institutions.
Continue readingLexi : Simply Telling Her Story Leads to an Important Invitation

Juvenile Rheumatoid Arthritis Patient Story

Meet Joy Ross- Juvenile Rheumatoid Arthritis Patient & Champion of Yes

当你患有关节炎时,你可能会不断地遇到你不能再做的事情——在你的生活中有这么多“不”。除了持续的疼痛、僵硬和疲劳,关节炎还会造成行动不便,影响你的职业生涯、社交生活或你热衷的活动。

So what can you do to turn that around – to start saying Yes again? What enables some people with chronic illnesses to live full, satisfying lives despite their disease and limitations?

Many factors come into play, and everyone’s situation is unique, but one quality that helps these people is one that anyone can develop – resilience. Experts say that the ability to navigate and even learn from adversity helps you keep going, mentally and physically, no matter what life throws your way.

“Individuals with arthritis and related diseases who find a way to be resilient tend to stick to their treatment plan more often. They manage their health better, and have an easier time dealing with negative situations, too,” says Rochelle Rosian, MD, a rheumatologist at the Cleveland Clinic. “Resilience allows you to make arthritis one part of your life instead of your whole story,” she says.

Continue readingMeet Joy Ross- Juvenile Rheumatoid Arthritis Patient & Champion of Yes