Category Archives: Stories of Yes

Thursday, February 14 |Arthritis Foundation

Movie Maker Deborah Snyder Knows What Real Super Power Is

To fans ofWonder Woman,Aquamanand other superhero movies that she produced, Deborah Snyder might seem a little larger than life herself. Perceptive, energetic and determined, she has a career beyond most people’s dreams, a lovely home near Los Angeles and a supportive family and husband, Zack Snyder, who’s also her business partner.

But every superhero has a villain, and Deborah’s is adult-onset Still’s disease, a rare form of autoimmune arthritis. It left her with hip damage that made even walking difficult for years.

看着她把一条腿夹在身下放松——这在几年前是绝对不可能做到的——我们不可能知道她患有关节炎，或者她仍然在服用药物，并更换了双髋。Continue readingMovie Maker Deborah Snyder Knows What Real Super Power Is→

Shane Cox_Stories of Yes
Monday, December 10 |Arthritis Foundation

No One Should Be in Debilitating Pain, Especially at 10 Years Old

Support the Arthritis Foundation and the54 million Americanswith arthritis.

Meet Shane Cox

When you meet Shane Cox of Petaluma, California, his quiet, calm demeanor gives little away about this young man. But whether he is speaking as an honoree at his localJingle Bell Runor at theCalifornia Coast Classic, it’s easy to realize he has experienced more in his young life than most his age.Continue readingNo One Should Be in Debilitating Pain, Especially at 10 Years Old→

Friday, December 7 |Arthritis Foundation

Patient Partner’s Words of Wisdom About Living With Gout & OA

As part of our vetting process forArthritis by the Numbers– a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how arthritis changes and challenges everyday living.

Meet Craig Buhr, who is challenged by gout and OA. Following, in his own words, are his thoughts about the statistics he reviewed in Arthritis by the Numbers – and how they relate to him personally.

Continue readingPatient Partner’s Words of Wisdom About Living With Gout & OA→

Monday, December 3 |Arthritis Foundation

No One Should Be in Debilitating Pain, Especially at 8 Years Old

Support the Arthritis Foundation and the54 million Americanswith arthritis.

Meet Cassidy Middleton

卡西迪·米德尔顿是一个快乐、茁壮成长的8岁女孩，她对米妮老鼠有一种爱的亲和力，每天都在亚利桑那州图森市温暖的阳光下骑马。

In December 2013, Cassidy was diagnosed with autism, and that’s when the Middleton family’s world changed. Most weeks were filled with therapists and appointments, and just when things started to settle down, Cassidy’s mother, Kari, noticed Cassidy was a “bit knock-kneed” and “walking funny” for a 3-year-old. After consulting with their pediatrician, who referred the family to a pediatric rheumatologist, Cassidy was diagnosed withjuvenile arthritis (JA).Continue readingNo One Should Be in Debilitating Pain, Especially at 8 Years Old→

Alayna Travaglione header
Monday, November 26 |Arthritis Foundation

Alayna Travaglione: Her Dreams of Studying Abroad Came True

出国留学是一种令人兴奋但又伤脑筋的经历。当你穿越一个未知的国家，遇见新的人，沉浸在不同的文化中时，你在家乡所习惯的舒适区就不复存在了。For a college student withRheumatoid Arthritis在这样做的同时，我经常质疑选择旅行一学期是否对我来说是最好的选择。作为一个所有关节都患有关节炎，还在接受手术治疗的人，一想到要远离家人和医生到一个不熟悉的地方，我就非常害怕。What if my joints got worse or something happened with mymedications? What if I decide midway I can’t put my body through this anymore? These questions often swirl around in my head as the activities become difficult or the field trips become too strenuous that I am left lying in bed the next day. When I do ask myself these questions though, I reflect on why I chose to study abroad in the first place.Continue readingAlayna Travaglione: Her Dreams of Studying Abroad Came True→

isabella soler header
Wednesday, November 21 |Arthritis Foundation

JA Mom: “I Know Just Enough to Know I Don’t Know Enough.”

Among patient partners who reviewedArthritis by the Numbers-一组经过验证的关节炎事实和数据-是佐治亚州的Soler家庭。Robin Soler has been active with the Arthritis Foundation ever since her younger daughter, Isabela, was diagnosed withjuvenile idiopathic arthritis (JIA). At the time she was one of the youngest children in the state to be diagnosed with JIA at just 12 months old.

Over the past 15 years, mother and daughter have seen about 50 different doctors and scores of other medical experts. Isabela has taken at least 20 different types of prescription drugs – consuming more than 15,000 pills in her lifetime, not including antibiotics and other normal childhood drugs. She has missed countless parties and playdates, and one recent semester had to skip 7thperiod 21 times for doctor’s appointments.

Isabela’s mother, Robin, is a developmental psychologist and senior scientist at the Centers for Disease Control and Prevention in Atlanta. Robin has had her own personal experience with arthritis, diagnosed withfibromyalgiawhen she was 26, though herchronic paingoes back to her mid-teens.

After reviewing arthritis statistics we’ve collected, Robin’s main takeaway: “I am happy to know there is information out there, but I’m concerned about the pictures the numbers paint for parents. We and our children need to be hopeful.”

Continue readingJA Mom: “I Know Just Enough to Know I Don’t Know Enough.”→

james-bradbury
Monday, November 19 |Arthritis Foundation

NFL Player James Bradberry’s Grandmother Inspires for Charity

Grandmother Plays Catch with NFL Player James Bradberry…and Inspires Him to Take a Stand Against Arthritis (and Put It on His Cleats)

James Bradberry grew up near Birmingham, Ala. with his mom and younger sister and grandmother nearby. Born with a love for sports and natural talent, he excelled at football in high school and then was recruited by Arkansas State University’s football team. But his Southern roots called him home, so he transferred to Samford University and was later drafted by the NFL Carolina Panthers, starting 12 out of 16 games his first year.Continue readingNFL Player James Bradberry’s Grandmother Inspires for Charity→

Voices bloggers discuss joy
Monday, November 19 |Arthritis Foundation

Voices: How Do You Cultivate Joy?

Gina Mara

Twitter @ginasabres

Gina Mara for VoicesJoy is something that we feel robbed of when dealing with everyday symptoms ofrheumatoid arthritis (RA)and doctor appointments. When I first developed RA, I felt lonely and isolated. I couldn’t do things I used to do that brought me joy, especially during the holidays, like attend parties, drink or even be on my feet for long. Connecting with people on social media expanded my horizons about ways to find joy. Now, I send people positive messages to bring them joy, which also makes me happy. I’ve sent so many of these that now I receive them, too, when I least expect it. I’ve even gotten videos of people from across the country singing happy birthday to me. I am still participating in society, I just do it a little differently than others. I might not be somewhere in person, but when I send some simple words spreading joy, people know they are in my heart and mind.

Joy Ross

Facebook @Through the Eyes of Joy

YouTube @Joy Ross

Joy Ross for VoicesI have always been a joyful person, but my complete loss of eyesight as a result ofjuvenile arthritis [JA]and my two young daughters’ diagnoses with JA, I have learned that joy is a choice. As a Christian woman of faith, I allowed God to teach me how to truly walk by faith and not by sight or on pure emotions. God began showing me the true meaning of joy even when the circumstances looked hopeless. Every single day I make the choice to begin the day on a joyful note. My story of hope, perseverance and love is changing lives all over the world! If it were not for our challenges and my faith in Jesus, I wouldn’t have this beautiful perspective. I believe when you choose joy, you find strength, hope and purpose.

Lene Andersen

www.theseatedview.com

Lene Anderson for Voices感恩是放慢脚步，去真正注意到快乐、美丽、有趣和美好的事情。它是关于经历而不是事物， 记住我是一个幸运的女人。This is easierduring the holidays, when reminders of love and all we have to be thankful for are all around, but I try to practice gratitude every day. Taking note of positive things andtalking to positive people的帮助。带着我的相机出去捕捉世界的美丽总是让我感觉更好， ，没有什么比静静地坐着 ，把一只呼噜叫的猫放在我的腿上，欣赏现在更好的了。 生活不是关于完美或物质，而是关于爱。 找到一种表达的方式——对别人，对自己——是 在 中心 我如何培养感恩。

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