In 2016, theOsteoarthritis Research Society International (OARSI)reported that osteoarthritis (OA) is the third most prevalent condition causing disability globally. Currently, there is no cure for OA, which is the most prevalent form of arthritis both in the U.S. and worldwide.
The Arthritis Foundation is working with manyOA patient advocacy organizations around the world开发对患者最有意义的治疗方案。考虑到这一点，基金会在我们的OA项目主任Angie Botto-van Bemden博士和国际骨关节炎基金会(OAFI)的领导下，一直在密切合作，领导一个国际OA工作组，开展两项行动，以收集全球关于OA如何影响患者的看法。该工作组还包括来自北美和南美的泛美风湿病协会联盟(PANLAR)的成员和意大利风湿病协会的患者，以及其他全球OA专家。
The goals of this initiative are to assess current global OA management pathways and ultimately improve patient outcomes through management efficiencies and consistent, evidence-based messaging throughout the health care team. The initial results of these pilot studies will be presented at two upcoming conferences.
The first pilot study — theGlobal Osteoarthritis (OA) Patient Perception Survey (GOAPPS)Pilot —is the first global survey of its kind to directly compare quality of life (QoL) in OA patients in the same survey, across different languages and cultures. Arthritis Foundation-affiliated OA patients were among more than 1,500 patients from English-, Spanish- and Italian-speaking countries who responded to the survey. Results emphasized the huge impact OA has on patients’ daily activities and their desire to have an active role in management; 79 percent of patients asked for additional options for nondrug/nonsurgical treatments. The international OA task force plans to run a follow-up GOAPP (version 2) survey that will look at current OA treatment guideline adherence globally.
The second study —Global OA Management Begins With Quality of Life (QoL) Assessment in Knee OA Patients: A Systematic Review —comprised 610 published scientific papers that covered 62 studies reporting QoL results for patients with knee OA. Not surprisingly, this study confirmed that specific individual factors, such as gender, body weight, exercise, mental health and education, can influence QoL and treatment outcomes for knee OA patients. Understanding how individual factors play into a patient’s QoL helps provide valuable tools to health care professionals working with their patients to co-develop more effective treatment plans.
工作组希望他们的研究结果将在oa相关的社会会议上召开专题讨论会，在患者、研究人员和临床医生之间继续讨论，以帮助优先考虑患者的需求。Botto-van Bemden博士说:“我很高兴地看到，我们的工作有助于改善与患者及其整个医疗保健团队共同开发OA管理计划。”“我们正在帮助OA患者在他们的医疗决策中成为合作伙伴和更强大的倡导者。”
These initiatives will be presented by our international partners this spring during the 2019 World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases, April 4-7, in Paris, France. They will also be presented by Dr. Botto-van Bemden at the OARSI 2019 World Congress in Toronto, Canada, May 2-6.
Related Resources:
- Learn more about Osteoarthritis Research
- Learn more about Osteoarthritis
- Donate to the Arthritis Foundation