Tatum O’Neal: On Top of Rheumatoid Arthritis and Feeling Lucky

I picked up the phone and heard, “Hi, this is Tatum,” and my vision went black and white for a second. Hearing that raspy voice, I saw Tatum O’Neal, at 8 years old, as Addie Loggins in the 1973 movie,Paper Moon，这是黑白拍摄的。年轻的塔图姆演好了这个角色，并为自己赢得了奥斯卡奖。

Back to reality, in full color. Tatum, now 52, needed to talk. She told me she’d reached out to the Arthritis Foundation because she’d been diagnosed withrheumatoid arthritis(RA) “with some osteoarthritis mixed in there” a little more than two years ago. She was so warm and sincere; we talked for a long time about her diagnosis and her experience. She wanted to understand the disease and how it affects people and creates a need for connection with others who have RA.

Although she has a good support system, she said, “I don’t think people understand.”

A Tough Road

Tatum and I stayed in touch, and on a beautiful day in Los Angeles, we finally met. She described how her RA seemed to come on slowly and then all at once. She was already in what she describes as a “low state,” dealing with pain from several neck and back disc surgeries in recent years and unhappy knees – one kept ballooning, refusing to heal after meniscal repair surgery. But this was different. “The pain changed in nature and location. It was scary,” she says. She had difficulty walking, and thought, “Wow, something is so bad.”

Then one night it hit her hard. Her right hand swelled and ached “unbelievably.” A rheumatologist diagnosed RA, and an MRI revealed damage in her ankles. “That was a sad day,” she says.

Tatum began taking a biologic drug, giving herself shots in her stomach once a week, and methotrexate. Not long after, she was hospitalized with pneumonia three times in four months. Doctors were puzzled. Finally, a pulmonologist realized her lungs were reacting badly to methotrexate. “It’s been a tough road,” says Tatum, “very, very scary for my children and for all of us.”

Off methotrexate, she’s on a new medication combination. When we reconnected a few weeks after my visit, she told me that lately her days have been “pretty perfect.”

Hollywood Child

塔图姆对逆境并不陌生。作为好莱坞的孩子，她说:“她的生活在某些方面很艰难，但在另一些方面却很美好。”After receiving an Oscar for the role of Addie, which she played alongside her father, actor Ryan O’Neal, she went on to star inBad News Bears,Little DarlingsandInternational Velvet. A young fan, like I was then, would have assumed she lived a happy, glamorous life. But in her 2004 book,A Paper Life(William Morrow), Tatum revealed a childhood of neglect and emotional and physical abuse and a family immersed in drugs and plagued with addiction. She, too, has struggled with addiction.

Sober now, Tatum says, “No question I’ve had high highs and low lows.” In 2011, Tatum and her father came together for a reality show calledRyan and Tatum: The O’Neals, which documented their pained efforts to reconcile after 25 years of estrangement.

Getting Ahead of Rheumatoid Arthritis

Tatum says, “My mental health is so important. I’ve had depression before. With RA, I always try to go to a place of hope.”

But Tatum is motivated to do more than just hope.

“I’ve got to get ahead of it,” she says. “I’ve got to! I have a young spirit and want to be able to do anything in the world that I want to do. I want a long, healthy life.”

塔图姆服用大量补充剂，从益生菌、姜黄到MSM。她强迫自己吃野生鲑鱼(“哎呀，”她说)，并限制糖、肉和油炸食品。

“I’m trying so hard to stay healthy,” she says.

塔图姆已经告别了每天和麦当娜一起跑7英里、做高强度瑜伽、做“粗糙的倒立”的日子。现在她主要做地板运动，比如伸展、仰卧起坐和普拉提。“核心工作帮了大忙。”现在她的膝盖似乎正在康复，她开始在跑步机上行走。她很乐意按照自己的意愿多搬家。

“I’ve worked out with trainers. They push you harder than you want to go. They don’t understand the damage. I know how far I can go,” she says.

One Day at a Time

Tatum gets the reality of RA. “It’s not curable but you can go into remission.”

Her three adult children have rallied around her. “My kids have been pretty great. They watch out for me.”

“I don’t have parents,” she says, referring to her mother’s death in 1997 and ongoing estrangement from her father. “I don’t think he knows I have RA,” she says quietly.

“I had to restructure my friends and support system,” she says. “You have to find a core group of family and friends to love you and stand by you.”

She feels lucky. “Right now, I can go out and see friends, I can dance and I have my humor.”

She says, “It’s good to have joy. It brings good energy. I try not to live too far in the future or in the past. I live one day at a time.”

作者:Marcy O 'Koon Moss，关节炎基金会

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